HOPE WITH SUPPORT
"HELPING OTHERS BY PROVIDING ENCOURAGEMENT"
BRAIN TUMOR AWARENESS AND SUPPORT
© “Many of the great achievements of the world were |
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Support Group !Next Support Group MeetingDate: Tuesday, March 16, 2010 Where: Community Foundation of the Eastern Shore HOPE With Support is a non-profit organization that depends solely on donations. If you can't make it to the meetings, would you please consider a donation? Your donation will go toward educational materials and group expenses. Your donation is tax deductible! Thank you! |
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ORDER OUR HOPE With Support
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We have our Brain Tumor Awareness pins available now. These were specially designed for HOPE With Support. They are a "Gray" ribbon design (for the "gray matter of the brain") with a daisy representing HOPE! Do you want more than a plain "Gray" ribbon? Order our pins and make people aware of Brain Tumors and support. With the daisy, they will ask you about your awareness pin. Share about Brain Tumors and make our cause known! |
Order your pin now by emailing us at HOPE@HOPEWithSupport.org or writing: HOPE With Support, Inc. PO Box 1524, Salisbury, MD 21802. We are asking for a donation of $5.00 for each pin and $6.00 for each pendant to help support HOPE With Support's mission. The pins and pendants look like the picture above.
INTRODUCING LUKE BROWN-SURVIVOR
By: Sandra J. Wyatt, Survivor
One of the best things about being a part of this group of survivors is the wonderful people that you meet along the way. I want to introduce you to a new friend and survivor, Luke Brown. Read Luke's story and then read his article on Insurance.
Luke S. Brown lives in Tallahassee, Fl with his wife, son, and a multitude of pets. He practiced insurance law for almost thirty years. He counseled clients, including insurance licensees and others whose business and professional affairs intersected insurance regulation, compliance, and coverage.
He served as an attorney with the Florida Office of Insurance Regulation, later became its Unauthorized Entities Supervisor, and was engaged in private practice. Luke also consulted for and wrote on insurance topics for a worldwide provider of insurance products, and taught insurance law at the College of Business of Florida State University.
Then things changed. Odd symptoms started, including physical imbalance, inability to focus and concentrate, short-term memory changes, and a general inability to do the analytical kinds of work on which he once thrived. It turned out that Luke had a brain tumor, specifically, an acoustic neuroma and hydrocephalus.
To make a very long story short, successful surgery was done at Duke University Medical Center. The tumor was fully removed-but Luke was left deaf on one side and with lasting brain injury from the tumor and the hydrocephalus. After some recuperation, he got physical and speech therapy. As good as the therapy was, he was not the same person, could not engage in many of the same analytical activities in which he once did, and needed to “reinvent” himself.
A sense of humor, a very supportive family, and a desire to help others spurs him on. We welcome him to this community to share and to help. He is a “work in progress” and recognizes that you are too. Please take advantage of his experiences and insights.
Read Luke's articles on Insurance here. These articles will help answer so many questions for all of us...
National Brain Tumor Society
Conference in Washington, DC
Join NBTS in Washington, D.C. on March 19-20, 2010 for an exciting conference created for patients, survivors, and their families. The day will feature presentations from multidisciplinary health professionals on topics ranging from treatment updates, survivorship, quality of life, pediatric tumors, late effects, and more. The conference will also provide opportunities for patients and families to receive support and connect with others with two tracks specifically tailored to adult and pediatric patients and families.
Read more here...
Karen Sosnoski, Ph.D.
Karen Sosnoski holds a Ph.D. in English literature from Brandeis University. She is a mother, writer, and documentary filmmaker living in Alexandria, VA. Her work has appeared or is forthcoming in Radioactivr Moat, Identity Theory, decomp magazine, The Chaffey Review, Camroc Press Review, Yellow Mama, The LA Times, Poets and Writers, The Washington City Paper, and Bitch, among others. She has blogged for skirt.com and written radio stories for This American Life and Studio 360. Her award-winning film Wedding Advice: Speak Now or Forever Hold Your Peace is distributed by Berkeley Media. When her son was born and diagnosed with mosaic Down syndrome in 2005, she became interested in disabilities--including those due to aging, accident and disease. Currently, she is writing a book of narrative nonfiction, When Birdboy Calls, about the psycho-spiritual connection between brain cancer patient David Welch and artist Rosemary Covey.
Her PT blog is Imperfect Offerings. Read her article about the founder of HOPE With Support, Sandra Wyatt.
THE BRAIN TUMOR AWARENESS
POSTAGE STAMP
National Brain Tumor Society (NBTS) has requested that the US Postal Service produce a stamp to increase brain tumor awareness. Join them in petitioning the Citizens Stamp Advisory Committee to approve a brain tumor awareness stamp.
SIGN THE PETITION
By signing the petition, you'll join patients, survivors, families and caregivers in an effort to bring national attention to this often under-funded disease. The NBTS's goal is to collect enough signatures to demonstrate to elected officials the need to increase an understanding of brain tumors. Sign today and encourage your friends and family members to join this drive for brain tumor awareness Sign Petition and read more here...
We Honor Survivors and Angels
on our Web siteWe host the Survivors and Angels names on our Web site to honor everyone who has fought their battle with Brain Tumors. Please feel free to send us a survivor or angel's name and email to update any names of survivors on our Web site.
We have had the opportunity to connect family, friends and lost acquaintances through the listing on HOPE With Support. This online list helps bring awareness to others of how many people suffer with this disease.
Honor you family member, friend or send in your own name.
BOARD OF DIRECTORS
ANNOUNCES NEW PRESIDENT
HOPE With Support is pleased to announce our new President of the Board of Directors for 2010 – Judy Grim. Judy Grim is not only a survivor, but also an activist for Brain Tumor Support. Judy joined the Board of Directors in November of 2008. For the past year she has lead the support group for HOPE With Support. The Brain Tumor Survivors and families meet at the Community Foundation on the 3rd Tuesday of every month. Her warm smile and gregarious personality are a welcome addition to lead our Board of Directors.
Sandra Wyatt contacted Judy on behalf of the newly formed HOPE With Support when she was diagnosed with a Brain Tumor. They met for brunch on June 12, 2007. Judy had surgery on September 6, 2007 for a posterior fossa meningioma.
Judy says that the support and understanding she received from Sandra and the HOPE With Support organization helped make a horrendous time easier to overcome. In thanks for that support, Judy wants to do her part to raise awareness of brain tumors and help provide support for others diagnosed with brain tumors.
As the 2010 President, Judy hopes to ignite a zeal in others to help fulfill HOPE With Support's mission to help brain tumor survivors and their loved ones and to help promote public awareness and support.
The Board of Directors also wishes to extend it's gratitude to Cathy Thorsten who served as our President in 2009. Cathy’s dedication and support helped us grow and move in a positive direction during the past year. Cathy will remain on our Board as Past-President.
Tony Nichols was re-elected as Vice President of the Board of Directors. Greg Loew and Lynette Clark will continue in their current roles as Secretary and Treasurer respectively.
HOPE With Support, Inc. was organized by a group of dedicated professionals, friends, family and a brain tumor survivor to raise brain tumor awareness and provide support for people with brain tumors, both newly diagnosed and survivors, their families, and caregivers on the Eastern Shore of Maryland.
HOPE With Support, Inc. is a non-profit organization that requires strong leadership from the Board in order to successfully carry out it's work. The next several years promise to be exciting ones for HOPE With Support. The organization will continue to have a positive impact on the communities we serve. The Board of Directors will play a central role in this important work to support our community and promote awareness of Brain Tumors.
SURVIVORS STORIES
Brain Tumor survivors are special people. Your story and how you are dealing with brain tumors can encourage someone else. Share your BT story on HOPE With Support. Send to Read Survivors Stories and share yours with others. Give them HOPE!
We are adding some touching stories! Do not miss them.
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HOPE WITH SUPPORT
• To "Help Others by Providing Encouragement" to persons diagnosed with brain tumors.
• To help brain tumor survivors, their families and their caregivers by providing information, education & support.
• To promote Quality of Life for the victims of this disease.
• To promote public awareness of this disease by speaking engagements, and sharing with others.
• To advocate for brain tumor awareness among the public.
