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Vigil - Reading Of the Names in Washington, D.C.
On Monday, May 5th, 2008 we read over 1000 names at Upper Senate Park at Upper Senate Park on the Capitol Hill grounds in Washington DC. HOPE With Support will continue to add names to our Vigil name list as you submit them. These names can also be updated as needed. Please forward names to the email address (Vigil@HOPEWithSupport.org). You may submit your own name as a brain tumor survivor, names of survivor family members or friends, and names of loved ones who are no longer physically with us.Read more here and read the list of names.
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MAY 1ST - BRAIN TUMOR AWARENESS DAY
HOPE With Support has written Mayors, Town Officials, and the Governor of Maryland to request Proclamations for May 1st - Brain Tumor Awareness Day. These Proclmations will be displayed at the "HIDDEN UNDER OUR HATS" booth at the Salisbury Festival on April 26, 2008. If you do not see your town's name listed, contact your officials and ask them to send in a proclamation. We will be glad to provide a "Sample Proclamation". Write your Senators and Congressman! Communicating With Elected Officials. Get Involved and speak up for Brain Tumor Awareness on the Eastern Shore.
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BRAIN TUMOR ACTION WEEK
Join the North American Brain Tumor Coalition in Washington, D.C. on May 5 and 6, 2008, to press the case for brain tumor research and care. Despite the efforts of some of the world’s finest researchers to develop better therapies, individuals who are diagnosed with brain tumors still do not have adequate treatment choices. In fact, the outlook for brain tumor patients has not improved significantly in the last 20 years. You can help change that situation by joining us in the fight for a stronger brain tumor research program – that means more federal dollars for brain tumor research, strong support for translational and clinical brain tumor research programs, and enhanced collaboration among brain tumor researchers.
The NABTC is also working to remove barriers to quality care through elimination of the Medicare waiting period. Your voice is needed to persuade Congress to enact legislation to end the two-year waiting period to receive Medicare benefits.
Register now through the North American Brain Tumor Coalition website. North American Brain Tumor Coalition
No prior experience is necessary. Most of us did not grow up wanting to be a brain tumor issue advocate. We each have unique talents that we bring to advocacy based on our life experiences.
While it may be outside of your "comfort zone," you can do this.
Advocacy training will be provided on Monday May 5 and appointments will be scheduled for you to meet with your members of Congress (or more likely their staff aide for health issues) for Tuesday,
May 6.
Please share this information with other brain tumors suvivors, caregivers, and their families.
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Another "Walk Around the World for Brain Tumo(u)rs" and the International Brain Tum(o)ur Awareness Week is planned for Sunday which will be held during Sunday 26 October - Saturday 1 November 2008. Walks can take place at any time between January 1 and November 1, 2008. Read more about this international event in IBTA's e-newsletter.
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 Meningioma Awareness Day
Hi Everyone -
I want to let you know that plans are coming together for the second Meningioma Awareness Day which will take place in September '08. This is the only patient conference to focus exclusively on Meningioma. This year, Meningioma Awareness Day will be part of the International Congress on Meningioma and the Cerebral Venus System which will bring the dialogue between patients and researchers to an international scale! As details come together and for more information, please visit our web site: www.brainsciencefoundation.org
Best wishes,
Jaime Mason
Brain Science Foundation • 277 Linden Street Ste 207, Wellesley, MA 02842 • Ph. 781-239-2903 • info@brainsciencefoundation.org
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 National Brain Tumor Foundation
Join the National Brain Tumor Foundation for a teleconference from leading experts.
Treatment Updates for Brain Tumors: A program for Patients and Families
December 4, 2007 • 10:30 am PST/1:30 pm EST
Register today at www.braintumor.org or call 800.934.2873
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The IBTA organized the first International Brain Tumo(u)r Awareness Week during 21-27 October 2007.
Walk Around the World Success!
Brain Tumour Supporters Walk the Equivalent of More Than Twice Around the World!
Oct 24 2007
Some 16,000 walkers had participated in the Walk Around the World for BrainTumours and there were another eighteen walks to take place during the current International Brain Tumour Awareness Week (21-27 October). For more information visit their web site at www.theibta.org.
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Providing Seeds of "Hope" To Grow A Garden Of "Love".
